The ICGG Gaucher Registry

The International Collaborative Gaucher Group (ICGG) Gaucher Registry is the largest co-operative observational database on Gaucher disease throughout the world. Data from over 5000 patients in over 60 countries are being used to maximise knowledge and optimise outcomes for patients. 

Any patient with Gaucher disease is eligible to participate through their doctor, regardless of disease type, treatment status or treatment choice.

For more information click here for a link to the Gaucher Registry website or other useful websites.